The unheard plight of those with rare diseases

Amid dearth of treatment options, patients suffer due to misdiagnosis, lack of awareness

The Daily Star – Moudud Ahmmed Sujan

In 2014, Iraboti Roy, 40, a patient with the disease Myasthenia Gravis, died a day after a doctor in the country’s top neurological hospital used a sedative on her.
Myasthenia Gravis is a rare, long-term condition that causes severe muscle weakness and often remains undetected in patients, leading to misdiagnosis and wrong treatment.Read more on The Daily Star

Author: apdimcion

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